Well it has been a while since I have posted anything, with the holidays and working fulltime I have been busy.
All in all everything has been going well. We continue to walk 2 miles a day despite the cold and snow. Went back to Rush for my 6 month visit and everything continues to look good. My plan now is to have a series of blood tests monthly, and visits back to Rush every other month.
There were a series of issues with my local hematologist / oncologist, so I have eliminated him from my care and soley go to Rush.
Happy New Year to Everone.
Sunday, January 22, 2012
Monday, November 14, 2011
November 2011 - Day +117
Well it has been a while since my last post, which means nothing new is going on, which is a good thing.
Met with my Primary Doctor last week, I had not seen him since last March. He was genuinely glad to see me, he even gave me a hug and we had a nice long chat. It was like a long lost friend.
Met with my local oncologist / hemotoligist today to figure the next steps. He was also glad to see me along with the nurse who used to give my injections, today she gave me a flu shot and a bug hug.
The human aspect of medicine is so important, it is so wonderful to have such welcoming arms and happiness at a place where our world was flipped upside down
The plan with the local oncoligist is:
1. Start maintenance on a drug by the name of Revlimid, I was on this drug during my initial therapy but at a much higher dose. This is one of those drugs that without insurance one could not afford to take. Yearly cost without insurance is $80,000 - $100,000.
2. I will have monthly blood tests and visits for the unforeseen future.
3. I will return to Rush every 6 months.
I think that is it, we are catiously getting back to normal. We hosted an Andersen game night last Saturday, the games nights had been suspended since I was in the hospital. It was a lot of fun and provides the medicine of laughter that is always welcome and needed.
Looking forward to getting out to my nephew Brandon's birthday party and Jane's brothers for Thanksgiving, though we do proceed with caution.
Everyone have a Happy Thanksgiving.
Met with my Primary Doctor last week, I had not seen him since last March. He was genuinely glad to see me, he even gave me a hug and we had a nice long chat. It was like a long lost friend.
Met with my local oncologist / hemotoligist today to figure the next steps. He was also glad to see me along with the nurse who used to give my injections, today she gave me a flu shot and a bug hug.
The human aspect of medicine is so important, it is so wonderful to have such welcoming arms and happiness at a place where our world was flipped upside down
The plan with the local oncoligist is:
1. Start maintenance on a drug by the name of Revlimid, I was on this drug during my initial therapy but at a much higher dose. This is one of those drugs that without insurance one could not afford to take. Yearly cost without insurance is $80,000 - $100,000.
2. I will have monthly blood tests and visits for the unforeseen future.
3. I will return to Rush every 6 months.
I think that is it, we are catiously getting back to normal. We hosted an Andersen game night last Saturday, the games nights had been suspended since I was in the hospital. It was a lot of fun and provides the medicine of laughter that is always welcome and needed.
Looking forward to getting out to my nephew Brandon's birthday party and Jane's brothers for Thanksgiving, though we do proceed with caution.
Everyone have a Happy Thanksgiving.
Sunday, October 30, 2011
October 2011 - Day +101
Well I hit a milestone, day 100. This means less frequent doctor visits and I am being returned to my local doctor. My next visit to Rush is scheduled the first week in January 2012, at that time I will start my re-immunizations.
Still no yard work, lawn mowing...until I am fully immunized, which won't be until July of 2012. This also includes no swimming in pools, lakes or oceans. So our vacation extravaganza will have to wait.
I will be seeing my local doctor monthly and have monthly blood tests to monitor my condition. If anything looks out of line I will be returning back to Rush.
I will also be starting maintenance, which will be done by using a drug by the name of Revlimid. I will take this drug for two years in hopes that it keeps everything in check. I took this drug at a higher dose along with two other drugs during my induction cycle.
Yesterday not only being day one hundred we also picked up dinner from a restaurant and brought it home. First time we have eaten something out since the transplant, though the doctors have stated we could have done this sooner we are extra precarious. Though my eating out will probably limited, my last blood test revealed my triglycerides were high, slightly surprised by this since I eat fairly healthy and walk 2 miles a day. So it is time to turn it up a notch, going to try and start jogging again. I few years back I used to jog daily, at that time my triglycerides were 66.
My hair is really starting to grow in. I have grown a beard; though not ZZ Top long; and the hair on my head gets thicker everday. My sister stopped by yesterday and her first comment was look at all you hair.
Jane has been promoted from bartender to warden. I joke with her about this, I will state I am going to do something and her reply will be you can't do that. I know she just has my best interest in mind.
Thanks for all the well wishes and prayers.
Have a Happy Halloween.
Still no yard work, lawn mowing...until I am fully immunized, which won't be until July of 2012. This also includes no swimming in pools, lakes or oceans. So our vacation extravaganza will have to wait.
I will be seeing my local doctor monthly and have monthly blood tests to monitor my condition. If anything looks out of line I will be returning back to Rush.
I will also be starting maintenance, which will be done by using a drug by the name of Revlimid. I will take this drug for two years in hopes that it keeps everything in check. I took this drug at a higher dose along with two other drugs during my induction cycle.
Yesterday not only being day one hundred we also picked up dinner from a restaurant and brought it home. First time we have eaten something out since the transplant, though the doctors have stated we could have done this sooner we are extra precarious. Though my eating out will probably limited, my last blood test revealed my triglycerides were high, slightly surprised by this since I eat fairly healthy and walk 2 miles a day. So it is time to turn it up a notch, going to try and start jogging again. I few years back I used to jog daily, at that time my triglycerides were 66.
My hair is really starting to grow in. I have grown a beard; though not ZZ Top long; and the hair on my head gets thicker everday. My sister stopped by yesterday and her first comment was look at all you hair.
Jane has been promoted from bartender to warden. I joke with her about this, I will state I am going to do something and her reply will be you can't do that. I know she just has my best interest in mind.
Thanks for all the well wishes and prayers.
Have a Happy Halloween.
Friday, October 21, 2011
October 2011 - Day +92
Well first week back at work full-time. The week went well and I am not too tired.
Back downtown Thursday for my last follow up before being released to my local doctor. Some final blood tests will done, including thyroid, cholesterol...
Trying to get back to life as we once new it.
Back downtown Thursday for my last follow up before being released to my local doctor. Some final blood tests will done, including thyroid, cholesterol...
Trying to get back to life as we once new it.
Thursday, October 13, 2011
October 2011 - Day +84
Met with the doctor today and went over all test results from the last couple weeks, and it has been confirmed that I am in complete remission.
After my next visit to Rush in two weeks I will be returned to the care of my local doctor. I will have blood tests monthly to monitor my condition and will return to Rush yearly for check ups.
I have been cleared to return to work full-time.
It is time to get everything back to normal.
After my next visit to Rush in two weeks I will be returned to the care of my local doctor. I will have blood tests monthly to monitor my condition and will return to Rush yearly for check ups.
I have been cleared to return to work full-time.
It is time to get everything back to normal.
Monday, October 3, 2011
October 2011 - Day +74
Well I couldn't wait 2 weeks to get the results of the missing test, it was driving me crazy. So I sent an e-mail to the doctor this morning and received a call back around 10:30 this morning. The results of the missing test were negative, which means complete remission and no second stem cell transplant. That is a load off our minds for now!
Now we wait for next Thursday (10/13) to see the next steps...
Had a good weekend and played tennis again yesterday and almost beat Alli. Played 12 games, which we both won six games a piece and then Alli won the tie breaker.
Now we wait for next Thursday (10/13) to see the next steps...
Had a good weekend and played tennis again yesterday and almost beat Alli. Played 12 games, which we both won six games a piece and then Alli won the tie breaker.
Friday, September 30, 2011
September 2011 - Day +71
Well back to the clinic yesterday to get the test results from last week or at least most of the test results. The doctor went over all test results but one, all the tests so far are looking good. The missing test result is one that is done against the extracted bone marrow, this test is much more sensitive in checking for any residual myeloma cells left in the bone marrow. So even if the blood tests have no tumor markers, this test goes a little deeper. Without this test the doctors cannot declare I am in complete remission.
My white blood counts continue on a steady decline, which is either from a medication by the name of Bactrim; that I take on the weekends; or just my body adjusting from the stem cell transplant. The doctor states there are other medications, but Bactrim is the best, so he won't change this medication until I am closer to being neutropenic. My current neutrophil count is 2.1, with a WBC of 3.01.
I have been feeling pretty good the last few weeks, pretty much back to normal, which means I am getting a little stir crazy, especially with all the rain this week.
Doctors won't let me go back to work full time until I get the the results from the missing test, so I am part time for two more weeks.
Be sure to wear yellow on Sunday October 2 - Livestrong Day, to show your support in the fight against cancer.
My white blood counts continue on a steady decline, which is either from a medication by the name of Bactrim; that I take on the weekends; or just my body adjusting from the stem cell transplant. The doctor states there are other medications, but Bactrim is the best, so he won't change this medication until I am closer to being neutropenic. My current neutrophil count is 2.1, with a WBC of 3.01.
I have been feeling pretty good the last few weeks, pretty much back to normal, which means I am getting a little stir crazy, especially with all the rain this week.
Doctors won't let me go back to work full time until I get the the results from the missing test, so I am part time for two more weeks.
Be sure to wear yellow on Sunday October 2 - Livestrong Day, to show your support in the fight against cancer.
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