Sunday, July 31, 2011
July 2011 - Day +10
Here we are 10 days post transplant still waiting for them stem cells to their job. White blood counts jumped a tiny bit today. I received my first nuepogen shot today to try and get things moving along.
Hair is starting to fall out, I am going to have my head shaved today, I will post pictures later today or tomorrow. We have prepared the girls for this day, it will be interesting to see their reaction.
WBC - .17
ANC - 0
Hemoglobin - 8.9
Platelets - 14
Hair is starting to fall out, I am going to have my head shaved today, I will post pictures later today or tomorrow. We have prepared the girls for this day, it will be interesting to see their reaction.
WBC - .17
ANC - 0
Hemoglobin - 8.9
Platelets - 14
Saturday, July 30, 2011
July 2011 - Day +9
Did not sleep well last night, I guess a Friday pastime is to race motorcycles on the Eisenhower Expressway at speeds of excess 100 mph in the wee hours of the morning. The Eisenhower expressway is right out my window.
Felt a little fatigued today, could be from lack of sleep last night or that my hemoglobin is getting low or my body needs a lot of resources to start making new cells.
White blood counts were up slightly, tomorrow will be the true indicator if my stem cells have engrafted to the bone marrow. If the White blood cell count is up again tomorrow this would be a good indication.
Tomorrow I start getting Neupogen shots to try and give the bone marrow a push to get things going.
WBC - .11
Hemoglobin - 9.3
Platelets - 30
Felt a little fatigued today, could be from lack of sleep last night or that my hemoglobin is getting low or my body needs a lot of resources to start making new cells.
White blood counts were up slightly, tomorrow will be the true indicator if my stem cells have engrafted to the bone marrow. If the White blood cell count is up again tomorrow this would be a good indication.
Tomorrow I start getting Neupogen shots to try and give the bone marrow a push to get things going.
WBC - .11
Hemoglobin - 9.3
Platelets - 30
Friday, July 29, 2011
July 2011 - Day +8
My immune system is completely gone. I have to wear a mask and gloves when I leave my room, this protects me from any germs. When in my room I am protected by an advanced filtration system, visitors and myself do not need wear masks.
I woke up feeling pretty good today, even though the storms kept me awake some of the night.
Jane has decided to spend last night and tonight with me at the hospital. Our thoughts were I would be hitting rock bottom and start to feel some fatigue. This way she could monitor me and the nurses, to insure I was getting everything I need.
No hair loss yet, I am told that will occur in about 1 week from now, which is about 2 weeks from the high dose Chemo.
WBC - .08
Hemoglobin - 9.6
Platelets - 43
I woke up feeling pretty good today, even though the storms kept me awake some of the night.
Jane has decided to spend last night and tonight with me at the hospital. Our thoughts were I would be hitting rock bottom and start to feel some fatigue. This way she could monitor me and the nurses, to insure I was getting everything I need.
No hair loss yet, I am told that will occur in about 1 week from now, which is about 2 weeks from the high dose Chemo.
WBC - .08
Hemoglobin - 9.6
Platelets - 43
Thursday, July 28, 2011
July 2011 - Day +7
Well things are getting harder rather than easier, I seem to be spiraling down still. The nausea was the worst yesterday evening, I would have expected it to get better rather than worse, but I guess that is not the case. The nausea this morning is no better and I am waiting for some more anti-nausea medicine to be delivered.
Counts still dropping, waiting for those baby stem cells to setup shop and start being productive.
WBC - .13
Hemoglobin - 9.8
Platelets - 61
Interesting story about platelets. There are two types of stem cell transplants:
- Auto - Where one's own stem cells are used
- Allo - Where a donors stem cells are used.
My transplant is an Auto, but if for some reason Auto transplant does not work then next step would be to do an Allo transplant. With Allo transplants, the best chance of getting a donor is from a sibling. Here is were the possible issue comes in with platelets. Both of my sisters donated platelets and had them directed to me. I was talking to a nurse one evening and she stated if I received platelets from my sister, there would be a good chance if I ever needed an Allo transplant they could no longer be donors for that. I brought this up to the doctor and she had several discussions with other people and I guess there are two schools of thought. So to be safe I will not be using my sisters platelets, if I do need a platelet transfusion.
Counts still dropping, waiting for those baby stem cells to setup shop and start being productive.
WBC - .13
Hemoglobin - 9.8
Platelets - 61
Interesting story about platelets. There are two types of stem cell transplants:
- Auto - Where one's own stem cells are used
- Allo - Where a donors stem cells are used.
My transplant is an Auto, but if for some reason Auto transplant does not work then next step would be to do an Allo transplant. With Allo transplants, the best chance of getting a donor is from a sibling. Here is were the possible issue comes in with platelets. Both of my sisters donated platelets and had them directed to me. I was talking to a nurse one evening and she stated if I received platelets from my sister, there would be a good chance if I ever needed an Allo transplant they could no longer be donors for that. I brought this up to the doctor and she had several discussions with other people and I guess there are two schools of thought. So to be safe I will not be using my sisters platelets, if I do need a platelet transfusion.
Wednesday, July 27, 2011
July 2011 - Day +6
Nothing new to report today, which is good. Just waiting for the stem cells to find their way to the bone marrow.
WBC - .32
Hemoglobin - 9.9
Platelets - 85
WBC - .32
Hemoglobin - 9.9
Platelets - 85
Tuesday, July 26, 2011
July 2011 - Day +5
Status quo, not much new today. Still fight a little nauseous everyday. Blood pressure was low, so I have been put on IV fluids. Slept good last night, feeling general tired / laziness.
What is my day like?
1:30 am - Nurse draws blood and takes vitals
6:00 am - Nurse reports blood counts
7:00 am - Walk the halls for my exercise
7:30 am - Vitals - Blood pressure, temperature and oxygen levels are taken. I am also weighed.
7:30 am - Breakfast arrives
8:45 am - Pills, Pills, Pills
9:00 am - Doctor stops in
10:00 am - Walk the halls
10:30 am - Jane arrives for the day
11:00 am - Vitals
11:30 am - Walk the halls
12:30 pm - Lunch arrives
3:00 pm - Vitals along with weight again
5:00 pm - Walk the halls
5:30 pm - Dinner Arrives
7:00 pm - Vitals
10:00 pm - Bedtime
11:00 pm - Vitals
Blood counts continue to drop.
WBC - 1.26
Hemoglobin - 10.5
Platelets - 106
What is my day like?
1:30 am - Nurse draws blood and takes vitals
6:00 am - Nurse reports blood counts
7:00 am - Walk the halls for my exercise
7:30 am - Vitals - Blood pressure, temperature and oxygen levels are taken. I am also weighed.
7:30 am - Breakfast arrives
8:45 am - Pills, Pills, Pills
9:00 am - Doctor stops in
10:00 am - Walk the halls
10:30 am - Jane arrives for the day
11:00 am - Vitals
11:30 am - Walk the halls
12:30 pm - Lunch arrives
3:00 pm - Vitals along with weight again
5:00 pm - Walk the halls
5:30 pm - Dinner Arrives
7:00 pm - Vitals
10:00 pm - Bedtime
11:00 pm - Vitals
Blood counts continue to drop.
WBC - 1.26
Hemoglobin - 10.5
Platelets - 106
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